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AOP Orphan: a European pioneer in the field of rare and complex diseases
AOP Orphan optimises the patient experience with integrated therapy solutions combining drugs, medical devices, and empathic care.
Austria-based company AOP Orphan Pharmaceuticals AG has been...
TB vaccine could protect babies against new infectious diseases
A new study has shown that a tuberculosis (TB) vaccine could help to protect newborn babies against a number of different infectious diseases –...
Innovation in rare diseases: improving patient care for blood cancer
AOP Orphan Pharmaceuticals AG is an international pharmaceutical company focusing on rare and special diseases. The company has developed an innovative pen for the...
UK institutions receive £2.3m grant for research of tropical diseases
Three UK institutions have been awarded £2.3m to investigate tropical diseases affecting some of the world’s poorest populations.
Scientists from Oxford Brookes University, University of...
Applying virtual reality to stroke rehab and neurodegenerative diseases
A new study has developed a novel, wearable rehabilitation device that uses virtual reality to increase brain connectivity.
The study, carried out at one of...
Renewed collaboration to eliminate tropical diseases
A decades-long collaboration between the World Health Organization (WHO) and Sanofi has been renewed in order to sustain efforts to eliminate neglected tropical diseases.
The...
Improving access to gene and cell therapies for people with rare diseases
A new report has addressed challenges to accessing gene and cell therapies for people living with rare diseases.
EURORDIS-Rare Diseases Europe and the partners of the...
Skeletal Rare Diseases Academy launched by IOF
A new International Osteoporosis Foundation (IOF) initiative has been launched to support communication, educational programmes, and research advances in rare disorders of the bone.
The...
Examining the impact of COVID-19 on the rare diseases community
An online survey launched by the National Institutes of Health-supported (NIH) Rare Diseases Clinical Research Network (RDCRN) aims to find out how the COVID-19...
Understanding MPS and other similar Lysosomal diseases
MPS Austria wants to make everyday life easier for children with Mucopolysaccharidosis and other similar Lysosomal diseases, and their families, by supporting them with...
Rare diseases: innovation, collaboration, and genomics
Professor Hackett discusses public-private collaboration, secure data sharing, and the potential of genomic sequencing for the treatment of rare diseases.
Professor Joanne Hackett, General Partner,...
Key genes could regulate T cells to treat autoimmune diseases and cancer
Researchers have discovered a way to control regulatory T cells that help the human body’s immune response.
The researchers at Salk, led by Ye Zheng,...
Chronic digestive diseases: gut microbiome and healthy nutrition
Leading digestive health experts and MEP Sarah Wiener address how healthy nutrition, starting from a young age, can help to reduce the risk of...
Genome sequencing: novel genetic cause of rare diseases discovered
A new study has discovered novel genetic causes of rare diseases which researchers believe could lead to the improvement of diagnosis and patient care.
A...
Protection against deadly, preventable diseases through European Immunisation Week
The EFN, as part of the Coalition for Vaccination, has launched a social media campaign during European Immunisation Week for nurses on vaccination for...
Rare diseases: better data framework needed to improve diagnostic rates
A new study has found that a better data framework is needed to improve diagnostic rates of rare diseases.
A new study has found that...
How autoimmune diseases impact patient experience
When your disease is hard to name and doesn't have visible symptoms, it can be difficult for others to understand that you are sick....
Molecule in lymphatic system implicated in autoimmune diseases
A new study has revealed how a molecule in the lymphatic system could have the potential to play a role in autoimmune diseases.
A study...
United European Gastroenterology: the burden of gastric diseases
In honour of World Stomach Day, Professor Tamara Matysiak-Budnik of United European Gastroenterology examines recent developments in gastric disease diagnosis and management.
On October 2...
Rogue cells responsible for autoimmune diseases, study suggests
For the first time, a team led by researchers at the Garvan Institute of Medical Research have pinpointed individual cells that cause autoimmune disease...
